Resources + Links

American Academy of Cerebral Palsy and Developmental Medicine

This organization is a multidisciplinary scientific society devoted to studying cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.

Easter Seals

Easter Seals provides services and family support to children and adults with disabilities and other special needs.

March of Dimes

March of Dimes works to educate healthcare professionals about best practices in perinatal health and to raise public awareness about cost effective interventions that can improve birth outcomes.

Muscular Dystrophy Association

Muscular Dystrophy Association is a voluntary health agency, a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular disease through programs of research, medical and community services, and public health education.

Shriners Hospitals for Children

Shriners Hospitals for Children are a network of 22 hospitals that provide expert orthopedic, burn, and spinal cord injury care to children at no charge.

Spina Bifida Association of American

The Spina Bifida Association of America’s mission is to promote the prevention of spina bifida and to enhance the lives of all affected.

United Cerebral Palsy Association

As one of the largest health charities in America, the United Cerebral Palsy Association's mission is to advance the independence, productivity, and full citizenship of people with cerebral palsy and other disabilities.

Provider Services

Medi-Cal Provider Manuals

The Medi-Cal provider manuals contain information about the Medi-Cal Program. Providers can search the manuals using keywords and phrases.

Denti-Cal Provider Manual

Directory of Regional Centers

California's has 21 regional centers with more than 40 offices located throughout the state that serve individuals with developmental disabilities and their families.

Map of Regional Centers (PDF)

CEREBRAL PALSY TREATMENT CENTERS, HOSPITALS AND DOCTORS

Children's Hospital Profiles
This service allows you to search for your local children's hospital or find a hospital with a specific program, pediatric specialist or area of expertise that your child needs.

Best Hospitals in Pediatrics
The annual US News and World Report ranking by reputation of the best Childrens Hospitals.

UCP-Net: United Cerebral Palsy Affiliates: Find the United Cerebral Palsy Center or Affiliate in your area. Simply enter your State or Zip Code.

Mayo Clinic - Rochester, Minnesota
Mayo Clinic has a specialized Cerebral Palsy Clinic that includes a coordinated, comprehensive multidisciplinary medical and surgical team that provides all necessary services to diagnose and treat cerebral palsy.

Children's Hospital - Boston, MA
The Cerebral Palsy Program at Children`s Hospital Boston provides interdisciplinary, state-of-the-art evaluation and treatment of children with a variety of neuromuscular conditions.

Children's Hospital - Milwaukee, Wisconsin - Child Development Center
The Child Development Center is dedicated to the care of children with developmental disabilities from infancy through adolescence. Services are provided directly or in collaboration with other pediatric specialists to provide high-quality, family-centered patient care, education, prevention, research and advocacy.

University of Iowa Health Care - Center for Disabilities & Development
As the only tertiary program of its kind in Iowa, the CDD is a resource for people of all ages who have disabilities of all kinds. In addition to serving people from Iowa, they are a resource for people from neighboring states and beyond.

Cincinnati Children's Hospital Medical Center
Developmental Disabilities provides services for infants, children, and adolescents, from birth to age 21, who are experiencing developmental problems, including Cerebral Palsy. Their team of highly qualified specialists determines the needs of each child and develops unique and total care plans.

Gillette Children's Specialty Healthcare - St. Paul, Minnesota
The Center for Cerebral Palsy at Gillette Children's Specialty Healthcare offers comprehensive, coordinated care for children, teenagers and adults with cerebral palsy.

Children's Hospital - St. Louis, Missouri

Ability Camp: A year round facility established in 1995 that provides Conductive Education as well as Hyperbaric Oxygen Therapy sessions for children with motor disorders such as Cerebral Palsy, Hydrocephalus, Brain Injury, etc. Located near Piston, in Ontario, Canada.

Center for Cerebral Palsy Plasticity: St. Louis Children's Hospital: Of all the surgical procedures currently performed on patients with cerebral palsy, selective dorsal rhizotomy has undergone more thorough scientific scrutiny than any other (including orthopaedic). Accumulated evidence and the Center's experience indicate that SDR is an excellent option for selected patients with spastic CP.

Opelousas Area Cerebral Palsy Clinic
Helps children and adults with CP achieve independence by providing physical therapy treatments free of charge in LA.

Futures Unlimited
Describes outpatient physical therapy and rehabilitation services in Minnesota.

NATIONWIDE CHILDREN'S HOSPITALS

Children's Hospital Boston
The primary pediatric teaching hospital of Harvard Medical School. Ranked number one pediatric hospital by US News and World Report.

Children's Hospital Denver
Because 'Kids Need a Kids' Hospital,' this Children's Hospital aims to "improve the health of children in Denver, in Colorado, and in the region, through the provision of high quality, coordinated programs of patient care, education, research and advocacy. "

Children's Hospital Los Angeles
'Solving the Puzzles of Childhood Illness,' Children's Hospital of Los Angeles has a mission to 'advance the health and well-being of children and adolescents by integrating medical care, preventive services, medical education and research in response to the needs of our community and in an atmosphere of love, compassion and respect for people.'

Children's Hospital of Michigan
Children's Hospital of Michigan is the only freestanding hospital in Michigan dedicated exclusively to caring for children. Take a 'kids view' online tour to prepare your child for his next visit.

Children's Hospital of Philadelphia
The first hospital in the US devoted exclusively to the health care of children. Their web site includes an extensive Vaccine Education Center.

Children's Hospital of Pittsburgh
Children's Hospital of Pittsburgh is the 'only free-standing hospital in western Pennsylvania dedicated solely to the care of infants, children and young adults,' providing health care for children from the regions of Ohio, West Virginia and western Pennsylvania.

Children's Hospital and Regional Medical Center
Because 'No one know children like Children's,' this hospital located in Seattle, Washington, is the premier pediatric referral center for the Pacific Northwest.

Children's Medical Center of Dallas
'for the love of children,' Children's Medical Center of Dallas provides complete health care for the children of North Texas. Features include a pediatric intensive care unit, a pediatric cardiac intensive care unit, a pediatric trauma intensive care unit, a psychiatric unit, nearly 50 outpatient clinics and a state-of-the-art emergency center designed specifically for children."

Children's Memorial Hospital Chicago
'Where Kids Come First,' this Children's Hospital in Illinois includes a Center for Transplantation, Cancer and Blood Diseases, Clinical Neuroscience, Neonatology, and Heart Disease for kids in the Chicagoland area.

Children's National Medical Center
This Children's Hospital in Washington, D.C., provides 'health care services that enhance the health and well-being of children regionally, nationally and internationally.' Their international programs take care of children from around the world.

John Hopkins Children's Center
Located in Baltimore, John Hopkins is Maryland's most comprehensive, acute-care hospital for children.

Lucile Packard Children's Hospital
Associated with Stanford University Medical Center between San Jose and San Francisco in California. Includes Centers of Excellence for mothers and babies, a children's heart center, transplantation program and a wide range of other patient and family support services.

Mattel Children’s Hospital at UCLA
This Children's Hospital cares for 'children from neighborhoods throughout Southern California and beyond,' and includes a 'children’s cancer treatment and research, pediatric heart, kidney, lung, and liver transplant programs, the nationally recognized Child Life/Child Development Program, and the Pediatric Pain Management Program.'

Rainbow Babies & Children's Hospital
Located in Cleveland, Ohio, Rainbow Babies and Children's Hospital of University Hospitals of Cleveland is a 'nationally renowned university affiliated pediatric medical center dedicated to excellence in family-centered care' providing medical care for children in the Midwest.

STATE DEPARTMENT OF EDUCATION: SPECIAL EDUCATION
Alice Parker, Director
Special Education, Department of Education
515 L Street, Suite 270
Sacramento, CA 95814
(916) 445-4729
Web: www.cde.ca.gov/spbranch/sed/index.htm

PROGRAMS FOR CHILDREN WITH DISABILITIES:
AGES 3 THROUGH 5
Alice Parker, Director
Special Education Division
California Dept. of Education
515 L Street, Suite 270
Sacramento, CA 95814
(916) 445-4623
Web: www.cde.ca.gov/spbranch/sed/index.htm

PROGRAMS FOR INFANTS AND TODDLERS WITH DISABILITIES:
AGES BIRTH THROUGH 2
Carlos Flores, Manager
Prevention & Children Services Branch
Department of Developmental Services
1600 9th Street, Room #310
Sacramento, CA 95814
(916) 654-2773
E-mail: cflores@dds.ca.gov

OFFICE OF STATE COORDINATOR OF VOCATIONAL EDUCATION FOR STUDENTS WITH DISABILITIES
Department of Education
721 Capital Mall
Sacramento, CA 95814
(916) 657-2451

STATE MENTAL HEALTH AGENCY
Stephen W. Mayberg, Director
Department of Mental Health
1600 9th Street
Sacramento, CA 95814
(916) 654-2309

STATE MENTAL HEALTH REPRESENTATIVE FOR CHILDREN AND YOUTH
Gary Pettigrew, Deputy Director
Systems of Care, Department of Mental Health
1600 9th Street, Room 151
Sacramento, CA 95814
(916) 654-3551
E-mail: GPettigr@dmhgw.cahwnet.gov

STATE MENTAL RETARDATION PROGRAM
Clifford Allenby, Director
Dept. of Developmental Services
Health & Human Services Agency
1600 9th Street, 2nd Floor
Sacramento, CA 95814
(916) 654-1897
E-mail: callenby@dds.ca.gov

STATE DEVELOPMENTAL DISABILITIES PLANNING COUNCIL
Judy McDonald, Director
State Council on Developmental Disabilities
2000 “O” Street, Room 100
Sacramento, CA 95814
(916) 322-8481

PROTECTION AND ADVOCACY AGENCY
Catherine Blakemore, Executive Director
Protection & Advocacy, Inc.
100 Howe Avenue, Suite 185N
Sacramento, CA 95825
(916) 488-9950, (800) 776-5746 (In CA)
E-mail: hn1232@handsnet.org
Web: www.pai-ca.org

CLIENT ASSISTANCE PROGRAM
Sheila Conlon Mentkowski, Chief
Client Assistance Program
2000 Evergreen Street, 2nd Floor
Sacramento, CA 95815
(916) 263-7372, (800) 952-5544
E-mail: smentkow@rehab.cahwnet.gov
Web: www.rehab.cahwnet.gov

PROGRAMS FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS
Maridee Gregory, Chief
State Children’s Medical Services Branch
Department of Health Services
714 P Street, Room 350
Sacramento, CA 95814
(916) 654-0832

PROGRAMS FOR CHILDREN AND YOUTH WHO ARE DEAF OR HARD OF HEARING
Fred Lewis, Chief
State Office of Deaf Access
Department of Social Services
744 P Street, MS 6-91
Sacramento, CA 95814
(916) 653-8320, (916) 653-7651 (TTY)
E-mail: deaf.access@dss.ca.gov

STATE EDUCATION AGENCY RURAL REPRESENTATIVE
Ted Hawthorne, Consultant
Special Education Division
CA Department of Education
515 L Street, Suite 270
Sacramento, CA 95814
(916) 327-3505

REGIONAL ADA TECHNICAL ASSISTANCE AGENCY
Erica Jones, Executive Director
Pacific DBTAC
Public Health Institute
2168 Shattuck Avenue, Suite 301
Berkeley, CA 94704-1307
(510) 848-2980 (V); (510) 848-1840 (TTY)
(800) 949-4232
E-mail: adatech@pdbtac.com
Web: www.pacdbtac.org

DISABILITY ORGANIZATIONS
Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CH.A.D.D)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
E-mail: national@chadd.org
Web: www.chadd.org

National Attention Deficit Disorder Association (ADDA)
P.O. Box 1303
Northbrook, IL 60065-1303
E-mail: mail@add.org
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881, (800) 3-AUTISM
Web: www.autism-society.org

Brain Injury
Claude Munday, President
Brain Injury Association of CA
P.O. Box 160786
Sacramento, CA 95816
(916) 442-1710; (800) 457-2443
E-mail: csm4483@AOL.com

Cerebral Palsy
Jo Gates, Executive Director
United Cerebral Palsy of Greater Sacramento
191 Lathrop Way, #N
Sacramento, CA 95815
(916) 565-7700
E-mail: UCPSacto@AOL.com

Epilepsy
Jackie Vella, Executive Director
Epilepsy Society of San Diego County
2055 El Cajon Blvd
San Diego, CA 92104
(619) 296-0161
E-mail:epilepsy@epilepsy-fnd-sd.org

Learning Disabilities
Betty G. Schiemenz, Administrative Director
Learning Disabilities Association of CA
655 Lewelling Boulevard, #355
San Leandro, CA 94579
(916) 725-7881
Web: www.ldaca.org

Mental Health
Rusty Selix, Executive Director
Mental Health Association in California
1127 11th St, #830
Sacramento, CA 95814
(916) 557-1167
E-mail: mhac@cwo.com

United Advocates for Children of California
P.O. Box 8900
Emeryville, CA 94662
(510) 547-8754
E-mail: vacc@pacbell.net

Karen Hart, Young Families Chair
NAMI-California
291 San Bernabe Drive
Monterey, CA 93940
(408) 373-3966

Grace McAndrews, Executive Director
NAMI Children & Adolescent Network
California Alliance for the Mentally III
1111 Howe Ave., Suite 475
Sacramento, CA 95825
(916) 567-0163
E-mail: califami@AOL.com
Web: www.cami.org

Mental Retardation
Laurie Shields, Executive Director
Arc California
1225 8th Street, Suite 590
Sacramento, CA 95814
(916) 552-6619

Speech and Hearing
Barbara O’Hara, Executive Director
CA Speech-Language-Hearing Association
825 University Ave.
Sacramento, CA 95825
(916) 921-1568
E-mail: csha@CAspeech.Hearing.org

Spina Bifida
Spina Bifida Association of Bay Area
P.O. Box 6015
Moraga, CA 94570
(925) 210-6006

Spina Bifida Association of Greater San Diego
P.O. Box 232272
San Diego, CA 92193-2272
(619) 491-9018

Visual Impairments
Gil Johnson, Director
American Foundation for the Blind-West
111 Pine Street, Suite 725
San Francisco, CA 94111
(415) 392-4845
E-mail: sanfran@afb.net

UNIVERSITY AFFILIATED PROGRAM
James McCracken, Director
University of California at Los Angeles, UAP
760 Westwood Plaza
Los Angeles, CA 90024
(310) 825-0470
E-mail: jmccracken@mednet.ucla.edu

Robert A. Jacobs, Director
Center for Child Development & Developmental Disabilities
Children’s Hospital LA
USC — University Affiliated Program
P. O. Box 54700, MS #53
Los Angeles, CA 90054-0700
(323) 669-2300

TECHNOLOGY-RELATED ASSISTANCE
Dennis Law, Project Coordinator
California Assistive Technology System
CA Department of Rehabilitation
830 K Street
Sacramento, CA 95814
(916) 263-8685 (V/TTY)
(800) 390-2699 (V/TTY, In CA)

PARENT TRAINING AND INFORMATION PROJECTS
Joan Tellefsen, Director
Team of Advocates for Special Kids (TASK)
100 West Cerritos Avenue
Anaheim, CA 92805-6546
(714) 533-TASK
E-mail: taskca@AOL.com

Title: California Community Birth Injury Resources | San Francisco Attorneys Walkup, Melodia, Kelly & Schoenberger